States Medical News

The All India Institute of Medical Sciences (AIIMS)-Delhi has issued an advisory for its staff to follow Covid-19 appropriate behaviour after a few of them were tested positive for the infection.

“Must use reusable cloth face cover/surgical mask in the workplace. Ensure proper cleaning and frequent sanitation of the workplace, particularly of the frequently touched surfaces,” the AIIMS management said in an advisory on Wednesday. “Cover your nose and mouth with elbow/handkerchief/tissue while sneezing and coughing. Maintain personal hygiene and physical distancing,” read the advisory.

“Gathering especially in canteens must be avoided, a gathering of five or more persons at any place in the office should be avoided. If feeling unwell then should leave the workplace immediately after informing their reporting officers. Such employees should also home quarantine themselves.” it added.

All employees who are at higher risk like pregnant employees, older employees or with underlying medical conditions should take extra precautions.

The Delhi High Court on Friday issued a notice to the Central Government on a plea moved by an 11-year-old child suffering from the rare disease Duchenne Muscular Dystrophy (DMD).

The child has sought direction to the Centre to release funds for continuous treatment. Justice Prathiba M Singh on Friday issued notice to the Ministry of Health and Family Welfare on the plea and listed the matter on April 13 for further hearing.
The petitioner has also prayed to direct AIIMS to forthwith procure medicines and continue to provide treatment to the petitioner and other similarly placed petitioners in connected matters.

The application has been filed by advocate Ashok Agarwal and Kumar Utkarsh has alleged inaction on the part of the government to consider the case of the petitioner for treatment through Antisense Oligonucleotide (AON) therapy of the petitioner.

The petitioner is suffering from a rare genetic disease known as Duchenne Muscular Dystrophy (DMD). Treatment is of high cost and is beyond the capacity of the parents of the petitioner, the plea stated.
It is also prayed to direct the All India Institute of Medical Sciences (AIIMS) to provide free of cost treatment to the petitioner.

It is further submitted that the impugned inaction is in violation of the fundamental and human right to life, health, and medical aid of the petitioner suffering from as Duchenne Muscular Dystrophy (DMD) a rare genetic disease as guaranteed to him under Articles 14, 21, 38, 39, 41 and 47 of the Constitution of India.

In terms of the enhanced National Policy for Rare Diseases, 2021 Rs 50 Lakhs qua each DMD petitioner was transferred to respondent AIIMS for procurement of medicines, the plea stated.

It is submitted that respondent AIIMS procured medicine for the petitioner in the budget of Rs 50 lakhs and now treatment has commenced.

It is also submitted that on 13.03.2023 petitioner received 1st dose of Exondys 51 medicine (36 ml) out of 120 ml procured out of the budget of Rs 50 lakhs.

It is further submitted that on 20.03.2023 petitioner was infused with the 2nd dose of Exondys 51 medicine (28 ml).
The plea stated that AIIMS has procured 120 ml of Exondys 51 medicine in the allotted budget of Rs 50 lakhs.
It is also stated that as per the petitioner’s weight, 120 ml of Exondys 51 medicine is divided into 4 doses for infusion.
Therefore, the petitioner will get only 4 doses in total and the remaining two doses will be infused to the petitioner on 27.03.2023 and on 03.04.2023.

It is needless to say that though the treatment of the majority of DMD patients in other connected has started they are facing the same problem like the petitioner herein, the plea said.

All the DMD patients petitioners in other connected whose treatment has commenced with sanction fund of Rs 50 Lakhs, will get only a maximum of 3-5 infusions depending upon the weight of the patient, the plea added.
Therefore, like the petitioner, other DMD patients also require doses of medicines for which timely orders need to be placed by respondent AIIMS so that their continuous treatment is not affected, the plea submitted.

It is submitted that normally the result of the dose infused is seen at least after 6 months. Therefore, it is much required in the interest of DMD patients’ petitioner children, that they may be provided with infusions of Exondys 51 medicine or other concerned medicines continuously. The Union of India and AIIMS are required to arrange for funds and place orders for the medicines in advance.

Therefore, respondent Union of India is required to sanction funds at the earliest to respondent AIIMS so that treatment of petitioner and other similarly placed petitioners whose treatment has commenced and treatment will cease after 3-4 doses of medicine can get further doses before the next date of hearing on 13.04.2023, the plea stated.

28th February 2023, New Delhi: An 8-year-old boy from Saudi Arabia with weight 84 kg, height 4 feet and BMI (57.2kg/m2) was suffering from MORBID OBESITY with OSA (OBSTRUCTIVE SLEEP APNOEA). OSA was so severe that he could not sleep in night and has to be awake whole night. Obstructive Sleep Apnoea (OSA) is a life-threatening condition which is associated with morbid obesity. Patient have apnea sleep (Air hunger) in night and feel sleepy throughout day and can be life threatening. It requires BiPAP machine to sleep overnight. It can be treated by losing weight with bariatric surgery and BiPAP machine can be removed in most patients as early as first week following surgery.

He was very much addicted to chocolates and fast food. He came to INDIA for help. He was advised psychological and pediatric Endocrinologist counseling but his family after meeting them wanted some definitive, fast result procedure to save his life. They wanted him to undergo BARIATRIC SURGERY and met Dr Rajat Goel at Rosewalk Hospital for same. Bariatric (Metabolic or Life style modification) SURGERY is like laparoscopic Surgery, like gall bladder or hernia or appendix surgery requiring 4 to 5 key holes to perform it.

Dr Rajat Goel refused surgery due to age of child and was not sure whether child will be able to understand post-operative dietary protocol. Because the youngest age for Bariatric surgery usually advised at the age of 14 and it is normal for the patients above 18 years. His family was counselled about the procedure and all its pros and cons for 1 month but since Child was having severe OSA (breathing is interrupted during sleep, for longer than 10 seconds at least 5 times per hour throughout your sleep period), and was advised BiPAP machine to breath which he could not tolerate, patient was taken for Laparoscopic Sleeve Gastrectomy after anesthesia and other clearances and informed consent.

The child lost 10 kg of weight in 1week time and could sleep easily without need of BiPAP machine. Due to hormonal changes after surgery he stopped eating chocolates and was counseled by dietician along with his family for healthy lifestyle like 40 minutes activity daily and healthy food intake. BARIATRIC SURGERY done on right patient at right time can be like saving with long lasting results. Life after surgery is like patient becoming a new born baby with new taste and control over eating which lasts for 6 months and all eating habits can be reformed due to hormonal changes in bariatric surgery.

It not only improves physical health and treats/ controls all diseases associated with obesity like type 2 DM, HT, OSA, PCOS, FATTY LIVER and lot more but also improves mental (depression, inferiority complex, anxiety, eating disorders associated with obesity) and social life. To summarize surgery gives you a second chance to live life in a healthy way.